We won!

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Our long story shortened...





20 years of being in love

14 years of marital bliss

5 years of infertility

9 months of a high risk pregnancy

2 perfect boys (at the same time)

1 heart failure

1 type 1 diabetes diagnosis

1 happy life

To see the whole story click on the "about us" tab

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I am a stay at home mom who is raising twins. One of my guys has type 1 diabetes and one does not. I am writing this blog to unite type 1 parents or twin parents. Comment on my posts or in the "what's your high?" and "what's your low?" to join the community of parents just trying to do the best we can!

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4/28/12

A Special Disney Helper!







After I did my blog about Disney, I got a message from a Robyn at www.travelwiththemagic.com. I was at first super excited! Sometimes I live in a PollyAnna world and I thought maybe she was from Disney and wanted to offer me free trip so that I could blog about my experience. Well, that didn't happen, but maybe one day!

 

Instead though, I discovered a person just as good! So, until I save up enough to get myself to the magical world of Disney, I will let you all know about her.

 

Her name is Robyn and she works for a company called Travel With The Magic. They are a travel agency that actually specializes in Disney. The twist is that her goal is to be the Disney Whisperer for "Special Kids".  Now I just made up that phrase for the sake of being "compassionately correct.(See, I just made up another one. I should write more at 2 am). Robyn knows Disneyworld and all the magic of the mystical land. But she knows it as it exists through the eyes of our special children. Our children that have Type 1 diabetes Type 2 diabetes,  autism, cerebral palsy, ADD, ADHD, allergies, etc...

 

When I spoke with her, I could feel the love and care she felt for every family she has helped over the years. She truly loves this specialized part of her job. She knows Disney is magical for families, but for families with special circumstances, it can also be intimidating!

 

Imagine that your child has a form of autism and is overwhelmed by a trip to the grocery store. A trip to Disneyworld would seem out of the question. But Robyn has been able to help such families navigate their way through their amazing Disneyworld week(s) with a lot less stress and anxiety. She knows the parts of Disney that are pleasing for an autistic mind.

 

She also knows the parts of Disneyworld that a parent of a Type 1 diabetic would appreciate.  This knowledge comes first hand, as her husband and son have Type 1 diabetes. However, her knowledge is not limited to autism or diabetes. She can help any child with a "specialty." (That one sounds good too!)

 

She can also help a family that has a child in a wheelchair. She knows the special passes that are available.  She knows the best months to go. She knows quiet places to eat and relax. She knows how to accommodate a 7-year-old with a stroller. She knows how to alert a chef when a child is allergic to the whole planet and only came out of his bubble to meet the big mouse! She really is the "go to" girl if your family has a child with special circumstances.

 

She knows that the cast members at Disney are ready and willing to help with any medical emergency. That is what makes them special.

 

She even has helped service dogs get into and navigate their way through the park! So she helps "special animals" too! She is heaven-sent.

 

In March, she hosts a Diabetic Mouseketeers tripfor families with diabetic children. It is a chance to enjoy the park knowing that there are other families dealing with the same issues at the same time. During this trip, she includes times when everyone can meet and mingle. We all know how it works when great minds collaborate!

 

Ok, now I know the cynical (I mean practical) ones out there are saying, "Great Shari, but Disney is expensive enoughI can’t afford a personal concierge too. Fear not my worrisome friends! You should know me better than that by now. I come bearing gifts! Her service is free! She can even take over your existing reservation with no cost to you, adding the benefit of her special knowledge! She has not paid, bribed or threatened me to toot her horn. No! She is just a great lady and I couldn't keep such a golden nugget to myself!


If you do not have a "special kid" but you know someone who does, feel free to pass this blog post onto them. 


Also, if you do not have a "special kid", call her if you and your family are going to Disney. She helps everyone!!

 

If you would like to contact Robyn, you can email her at Robyn@travelwiththemagic.com or call her at800-680-4312 ext. 125. Tell her I sent you and she will be thrilled to give you extra special love!


Don't forget about us little people. Let us know how your trip goes! 




4/24/12

Having twins comes in handy sometimes!



So, Zeke lost his two front teeth yesterday. He lost them the same way Rocco "lost" them. No old fashioned door slams for us! He also lost the exact same two teeth as Rocco. Twin thing? Maybe. 

It went great! He manned up and just let daddy work his magic. They came out easily! 


We all went up to bed to put them in the pillow for the tooth fairy to come! 

That is until one of the teeth fell out of the tooth fairy pillow somewhere between the kitchen and his bedroom. Between those two rooms are three other rooms including a set of stairs. Yes, each of these rooms have cream carpet. Perfectly tooth-colored cream carpet. Talk about a needle in a haystack! 

Well, Zeke started to cry and Rocco started a tooth finding mission! Duh duh duh daaaa! Rocco will definitely have a Superman complex when he gets older. He loves to come to the rescue. Zeke says he can't fall asleep until he finds it. So that of course had Michael and I on our knees helping out the mission. 

After about a half hour of looking, Michael and I got bored and just wanted to stop looking. Every time we tried to explain to Zeke that the Tooth Fairy will DEFINITELY (duh?) bring two golden coins, he would cry harder. 

Michael even pulled the old, "we can just write the Tooth Fairy a letter" trick. Until we both realized that telling a six year old to write a letter could take longer than actually finding the tooth in the cream colored carpet! Scratch that! 

Michael whispered to me, "I wish we had a decoy tooth we could use and just trick him into believing we found it" 

Hmmmmm.... Now, who do you know that just lost the EXACT same tooth about a month ago????

Oh no! You dittttnn't!!!

Oh yes, ladies and gentlemen, we did! 

Michael ran down into my jewelry box got one of Rocco's teeth and came running up the stairs chanting "I FOUND IT!".

Zeke (and Rocco) smiled two huge toothless smiles and tucked the tooth into the pillow and went right to sleep. 

Now we are not proud parents, however, we are crafty parents! Every family needs these kind of stories, right? 

Share a funny story from your family!