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Our long story shortened...





20 years of being in love

14 years of marital bliss

5 years of infertility

9 months of a high risk pregnancy

2 perfect boys (at the same time)

1 heart failure

1 type 1 diabetes diagnosis

1 happy life

To see the whole story click on the "about us" tab

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I am a stay at home mom who is raising twins. One of my guys has type 1 diabetes and one does not. I am writing this blog to unite type 1 parents or twin parents. Comment on my posts or in the "what's your high?" and "what's your low?" to join the community of parents just trying to do the best we can!

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5/26/12

Zeke saves the day!

It only takes one time.

 

So tonight the boys, the dog and I went for a walk around the block. Like we always do.

 

Halfway around, Rocco says “I feel low. I turned to look at him and he looked low - pale and tired.  Oh, my God! I didn’t have his blood sugar monitor or his glucose tablets. How could I forget?



 

I guess I always figured I could run home. But this seemed problematical as I took in the scene -  my exhausted and hypoglycemic son, my full-of-energy other son doing scooter tricks, my 15 year old dog limping behind and Rocco's f#%*^, bulky, remote control car!

 

I told him to climb on my back and I would carry him piggy back. I cursed myself. We got 3/4 the way around and Rocco said he couldn't go any further and just wanted to sit down. I could see my house and I told him I would run and get the tablets.

 

When your blood sugar is low, you can be stubborn and irrational. He grabbed my leg and begged me not to leave. We only had one choice. We both looked over at the hero on the scooter! I looked at Zeke and said "You're strong. Please go get Rocco some tablets. They are in the cupboard."

 


In true Zeke fashion, he simply said "OK" and "I know". And away he zipped!


Click here for the video


 Scooting down the path. Five minutes later he returned with a roll of glucose tablets in his hand!!!! 


He said "here you go Rocco", as he passed him the roll. 

 

My/our hero!

 

Each boy ate three tablets (a special sweet treat for non-diabetic Zeke) and we all hobbled home. Rocco on my back with his car in his hand banging me in the chest, Zeke with his scooter and the old limping dog.


Click here for the video


Note to stupid self: Bring monitor and tablets EVERYWHERE you go and don't be so cavalier and think it will never happen to you...


To tell the truth, when I got the boys in bed, I kind of had a pity party. I texted my friend explaining my terrible error. Her son is diabetic and I knew she would understand. Then, I cried. Stupid Damn diabetes!! It can infect even an innocent walk around the block! I hate this damn disease sometimes. 


After the pity party, I got on Facebook hoping to get lost in my friends' lives since at that moment I felt like mine sucked so bad. 


At least I felt that way until I saw this picture that someone shared. 



So, after I stopped sobbing at this picture, I can for sure say that my life does not actually suck...

5/23/12

diabetes vs. career




Two years ago, I applied for a job. A really big sales job! Lots of money and lots of perks. It was a lot like the job I had before the boys were born. I was the second runner up and I did not get the job.  I felt terrible about not getting it.  It was such a blow to my ego.
 
However, since then I have thought many times that I was grateful not to get that job. It required traveling out of state for ten days for training up-front. Then working on the road and traveling to quarterly meetings out-of-town. At any point in time, I would have been maybe an hour away from Rocco and Zeke. The boys were four at the time. Looking back now, I would have missed so much. I am definitely a believer that everything happens for reason.
 
But last Thursday, I got an email from the same company wanting to know if I would be interested in interviewing for that same position again. At first, I was elated! I was just so excited that they remembered me! I felt like, "I told you that you should have hired me." Sorry, but it's true!
 
I spoke with Michael and we hastily/excitedly/preliminarily agreed to write her back and say "Yes!" The job paid a lot and, more importantly, it had a 401k.  My previous 401k had stopped growing when the boys started growing.
 
I was initially excited to get back to my old life of swanky cocktail hours, schmoozing with the customers, meeting deadlines and quotas. New suits and high heels! Really important stuff! It would be so great to feel important again. It seemed like a fairy tale compared to my current projects of reorganizing my kitchen and volunteering in the classroom.
 
But, as the next two days passed, some sobering realities set in. It wasn't pretty.
 
If I got the job, I would be flying to Utah within a few weeks for the ten-day training class. That would have been right when the boys were coming home for summer vacation. Then I would be gone from them every day from 8 to 5, forever and ever. The great money would bebreached significantly by a nanny’s salary. I would also need to rely on the nanny, Michael, family and friends to get our life done while I traveled each quarter for the out-of-town meetings. Sure, I thought, "Women do this every day. Michael and I will work it out! Why can't we have it all?"
 
Then, I remembered one obvious reason. Rocco, my Type 1 diabetes buckaroo!
 
My stomach sank. How would I find a trustworthy someone in the next couple of weeks to care for him? Type 1 diabetes requires constant vigilance and never-ending care giving activities. For all the gory details, check out my friend Meri's post. She perfectly puts into words what a parent of a diabetic child goes through in a day. Click here to read her post.
 
 
So now, after reading that, can you see the dilemma too?  How could I ever teach a wide-eyed, well-intentioned, twenty-five-year-old ALL of that within the next couple of weeks? How would we continually coordinate information between nanny, me, grandma, my sister and Michael?  Something would for surely get messed up along the way. And a simple mistake with diabetes can have serious consequences.
 
Diabetes needs a home base for it's numbers. It needs a brain. Right now, I am that brain just as Meri is the brain for her operation of raising three children with Type 1 diabetes. If there are too many brains it just tempts fate of poorly controlled diabetes. I couldn't do that to him. The better we take care of Rocco now the less complications he will have in the future. Diabetes can affect your sight, your heart, liver, kidneys and limbs. This poor little guy is about to embark on a lifetime full of responsibilities. If I can help him with that now,  do not care if I live in a fancy old folks home. 

Plus, how would we train that person to understand that Rocco bites his nails when he is high and that the corners of his eyes get red when he is low? Also, he can't have peanut butter because it makes his blood sugar go to 300 .
 
What happens if he passes out because she didn't understand that when his blood sugar is 79, he can't go to play with his friends until he has some sugar? And then he can only play if he waits fifteen minutes while the sugar kicks in! try telling a new nanny who's trying to learn everything to make a six year old sit and watch his friend's play with his brother for fifteen or more minutes. It wouldn't even be fair to her. 
 
What happens if he is hospitalized and I am in day six of a training class in Utah, several hours from home? What happens if I am at work an hour away and his port comes out? What happens if he gets dehydrated and his blood sugars go too low? What happens?  What happens?
 
So I imagined all these dreadful scenarios, each one worse than the other. In each scenario, I am somewhere smiling and closing a sale while my boy is lying unconscious on the floor.
 
And I haven't even mentioned how my absence would affect Zeke! My little angel needs me still!
 
Then my mind drifted to the future. Diabetes can be more difficult for teenagers because hormones and stress cause blood sugars to rise and fall more than the fancy fountain at the Bellagio in Las Vegas! My friends are forever on their phones texting back and forth to their teens with adjustments to insulin because of their child's day of adrenaline-filled drum line practice and stress-filled test taking. Could I get all this done while also performing my very important job?
 
Would any of these terrible scenarios I have imagined ever come to pass? Realistically, probably and hopefully not. But, “what if?” Should I be limited by the "what ifs?" Maybe not, but this job came with a lot of variables. A lot of variables and no home base for all the numbers. 
 
At first, Michael was on board with the job. He said he could handle being a home base for the numbers. he is wonderful with Rocco and has a deeper sense of responsibility than most people should. He said they could just call or text him if I wasn't available.  I know for him it must have been so tempting to finally share the daunting burden of providing for the four of us. But, as we spoke of “what ifs”, we both agreed - it wasn't time yet. Today’s “what ifs” were just too scary for us both. He likes me to be the one to care for Rocco when he can't do it. For now, he trusts only me to handle his sons’ daily lives. That is worth more to him than sharing the money burden. He said, "We have a great life. Why ruin it?" I told you he was a peach!
 
When I asked my mom for advice, she simply said in so many words, "2012 Shari can no longer be 2002 Shari". She meant that 2002 was a different time without kids or diabetes. This helped me with my decision.
 
Will I get another chance at a sales career sometime in the future? Who knows? It may be that no one will want to hire a mom who hasn't worked as a sales rep in years? But, as I wrote a "Thank you but no thank you" email, my heart got lighter. I knew it was the correct decision for my family right now and for me personally. I won’t close any doors for the future, but for now I will wear my heels to Field Day at their school!

As for the funding of our retirement,  I'm scrappy. We'll find a way. I still have to publish my book. Maybe I'll be on Ellen one day to pitch the book and thousands of people will upload it on their tablets.
 
For me, feeling important is when we get a 120 on Rocco’s blood sugar meter or when Zeke is asked to be a mentor in helping other students to behave because he is a "model student". It's when I can send Michael off on his day with clean clothes, two healthy, thriving boys and a happy, settled wife. Settled wife, settled life. Right?

Oh well, so we will be poor in our old age. Raising two boys who will be co-President's will be my investment opportunity. Who needs funds or bonds with cuties like these?

Hey, does anyone if Obama's parents live with him at the White House? And if that's true, you bet your sweet ass, as Rocco boards Air Force One I will still be on the tarmack yelling "honey, check your blood sugar before you take off!!". Poor kid... 




5/20/12

My Diabetes Hero

Wow! I have had so much fun writing every day for Diabetes Blog Week! I have had such great comments through Facebook and on my site. I even gained three new members to Everyday Highs and Lows which to me is the greatest compliment! One lady even told me I was and inspiration! Totally bawled... Thank you everyone for your support! It has been a great week!

Today's last topic is a great one. It is "who is your diabetes hero?". We all know the obvious choice is this little man right here..
And don't get me wrong, he absolutely is! 

But, I have another guy that I actually look up to, also. He has had diabetes since 1981. He has checked his blood sugar around 8-10 times a day since let's say, you were in high school. Or since your first child was born. Or since you bought your house. Every single day. 

His running A1c is 6.9. He has only been in the hospital less than a handful of times for lows. Never for highs and never for problems resulting in elongated high blood sugars. He has carried on a career as a major executive while handling the hour by hour care that diabetes requires. He used the first pumps that came out. His original blood sugar monitor was HUGE! He has NO complications from his diabetes and he is 66. That is 31 years of monitoring every single thing he puts into his mouth. He has checked his blood sugar on average 101,835 times!! He never complains. Ever. He never speaks of burning out. He just handles it. Every meal, every drink, every day. Just handles it. 

So, I can proudly say that my father-in-law, the editor of my blog, and Rocco and Zeke's grandpa is my diabetes hero! So, thanks  Liza for saying that about me but Tom is really the inspiration here! Thanks Tom for giving Rocco and I a model with which to aspire! 


What does diabetes look like?

Today's topic for Diabetes Blog Week is: show what diabetes looks like through some snapshots. So here you go...

This is what we keep his pump in. Pjs have no pockets.

This is him getting checked during his basketball game.
This is three days before Rocco was diagnosed. He had lost a quarter of his body weight and was not yet 2 years old.


These are his test strips. We use these every time we poke his finger to check his blood sugar. There are 50 in each box. This is a two month supply.

This is him at the same waterpark three days before he was diagnosed. I am guessing in this picture his blood sugar was above 500. We had no idea he diabetes. He chews his nails when he is high. We know that now..
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This is him at the school Valentine's Day party. This one had low carb food, thank God. But typically these are a nightmare.

This is Rocco without diabetes.

People always tell me I can cure him with exercise and eating right. 


This is how his pump attaches. 

This is a perfect blood sugar number for a child.

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This is him going to play in the neighborhood. He has a backpack with water, his monitor, sugar tablets and yes that is a cell phone. He calls me if he feels low. 

I loved this picture until I washed his hands and the paint colored all of the holes in his fingers from when we check his blood sugar. They were everywhere.

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This is my man giving himself insulin. He's six.


This is what he looks like when his blood sugar is 326.
Yes he is eating ham pieces and diet pop...

Here is an after school snack when his blood sugar is high. 

But this is also him....
just being a kid,

A brother,

A sweetie,

a goof ball,

And a perfect little human...