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1 type 1 diabetes diagnosis

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I am a stay at home mom who is raising twins. One of my guys has type 1 diabetes and one does not. I am writing this blog to unite type 1 parents or twin parents. Comment on my posts or in the "what's your high?" and "what's your low?" to join the community of parents just trying to do the best we can!

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3/28/12

Disney Loves Kids with Diabetes!

Like almost every mother out there, I have always wanted to treat the boys to a trip to Disneyworld.

I went when I was four and I still remember It's A Small World, the way the fur on Pluto's suit felt when he hugged me for the picture and the way my 1970's polyester dress scratched my first degree sunburned shoulders. I also remember the magical world that is Disney.


As much as I think of the magic, every time I have considered a trip to Disneyworld over the past six years, there are other thoughts that entered my mind:

• Screaming infants on a delayed flight
• Portable cribs in a hotel room
• Heavy double stroller.
• Hot sweaty babies.
• Toddlers having tantrums
• Grumpy four year olds.
• Blood sugars rising because of tantalizing treats beautifully displayed.
• Blood sugars falling because of walking for hours.
• Heavy $5 bottles of water.
• Pumps being taken off and put back on because of pools and water parks.
• Security for twin toddlers.
• Packing all of the diabetes supplies.
• Spending at least $4,000 in five days.
• Heavy backpacks filled with kid stuff.
• My own healing heart as I troop through 90 degree weather with two toddlers and a husband who doesn't like crowds.

So, needless to say, we never went.  Anywhere.  Any consideration of a family vacation also brought up the same thoughts.

Until last Thanksgiving, when we went to Texas to visit my brother-in-law and sister-in-law and their kids. You know what? It was awesome! The packing of the diabetes supplies wasn't bad at all. Blood sugars ran well. Family was awesome! And the boys LOVED their first flight!

This experience made me brave enough to research a Disney trip. We haven't booked it yet, but I was talking to my friend Amy about ripping the Band Aid off once and for all and she sent me this link:


It is Disney's on-line parenting site. Much to my surprise, they have a separate tab about Type 1 Diabetes!  I have learned that Denise Jonas (diabetic Nick Jonas's mom) and Lilly Diabetes have teamed up with Disney to launch an area in the Disney world that is all about Type 1 diabetes!

Denise and Lilly also feature Coco the monkey, a new character that has Type 1 diabetes. Wow!! This is so exciting!  Click here for the details:

Another "diabetes mom" friend told me that when you book on 1-800-Disney, all you have to say is that your child is diabetic.  Then, they start asking you his or her insulin regiment, insulin type, special dietary requirements and all sorts of other questions on taking care of your child! Wow! Thanks Nick and Denise Jonas and the folks at Lilly! I am less scared to go now!

Once I actually book the trip, I will blog the entire experience and keep you all in the loop on the pitfalls and exciting things that happen to us during the trip. Stand by...

Anyway, let me know if you order anything from Cindy or if you go or have gone to Disneyworld. I would love to hear about your experiences!

Here are three other wonderful websites I found that you may enjoy!



Robyn at Travel with the magic travel agency says she knows everything there is to know about diabetes at the park! Her husband and her son both have Type 1 diabetes so she knows first hand the perks and pitfalls of traveling to Disney with diabetes. You can see her website at www.travelwiththemagic.com and you can reach out to her at Robyn@travelwiththemagic.com.
Tell her you got her name from www.everydayhighsandlows.com and she will treat you extra specially!

http://www.tsa.gov/traveler-information/passengers-diabetes

2 comments:

Robyn said...
This comment has been removed by the author.
Robyn said...

I love this post. The links are helpful. When you are ready, Disney is what I do and I specialize in helping families with Diabetes, Celiac, food sensitivities, and more - over 75% of my guests have Diabetes. All of my experience comes from first hand experience since both my son and husband have Type 1. There is so much I can help with that includes but not limited to: resort selection, dining reservations, diabetic needs, daily itineraries, best attractions at the parks, special dietary needs, and so much more. Everything I do is a free service. I have a real passion and love for Disney. My goal is to take that passion, share all I know with others, and ease the stress of planning a trip to the most magical place on Earth.
If I can help you with anything, just let me know. Robyn@travelwiththemagic.com