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Our long story shortened...





20 years of being in love

14 years of marital bliss

5 years of infertility

9 months of a high risk pregnancy

2 perfect boys (at the same time)

1 heart failure

1 type 1 diabetes diagnosis

1 happy life

To see the whole story click on the "about us" tab

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I am a stay at home mom who is raising twins. One of my guys has type 1 diabetes and one does not. I am writing this blog to unite type 1 parents or twin parents. Comment on my posts or in the "what's your high?" and "what's your low?" to join the community of parents just trying to do the best we can!

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2/18/12

Independance (for us both)



The other day after I sent the boys off to school, I entered my silent house. I looked at the pile of dishes. I looked at the pile of laundry.

 I looked at the thawed meat that needed to magically become dinner. I said out loud to myself, "I'm bored". 

 This is the first time I have said since the guys were infants. Man! Those infant days were borrrriinnggg! I am one of those people who can constantly keep busy buzzing around life creating projects for myself.  I rarely sit except for at 9:00 when I indulge in some trash TV on Bravo.




thought maybe my mood was dictated by the weather since it is nice but always gray outside in the winter.  These days can dampen anyone's  spirit. But, I realized that for the first time since the boys were born and also since Rocco's diabetes diagnosis, no one needed me. The silence in the house and in my head was deafening and kind of scary. 

Taking care of a child with Type 1 diabetes is life-dictating. Your days are spent watching each carb that they eat, watching how much stress that child feels, watching if they might be coming down with a cold, watching how much insulin you give them, and watching how much food they have eaten vs. exercise they have done. All of these things are simultaneously effecting his blood sugar number.  Until today, I guess it became second nature and I wasn't aware until Rocco went to school how much of my brain was taken over by these tasks. I am not bored like I have nothing to do all day but I guess I am mentally bored.  The space in my head that was taken over by these tasks has made room for other thoughts. It's probably like finding out who you really are after getting a divorce. I am sure moms who send their last kid off to kindergarten go through the same feelings too. It feels like a different me now. 

Rocco has been gaining more independence with his diabetes in three different ways:

1) In the mornings, he now checks his own blood sugar. I always did this for him but when I saw a seven year old do it by himself I thought "what the heck".  This is a hard thing to let go of because he is still so young (he's only 6) and he will have his whole life to check himself . I always think I can carry that torch a little while longer for him. But lately, he has been asking me, "Can I do it, mom?" 

So when I asked him if he would like to check himself before he comes downstairs in the mornings, he lit up like a Christmas tree! He loves "a job" and he loves responsibility. It makes him feel grown up. We decided he would write the number down on a sticky note and bring it down. So now every morning, with messed up hair and a pant leg hap hazardly tucked into a sock, my little man hands me a note in 6 year old chicken scratch with his blood sugar number. He is always so proud to have gotten the assignment right! 


2) His school is doing an amazing job! They text me when they check him and let me know his number. So, far there haven't been any emergencies. If there is a low, he tells the teacher "I feel low".  Then she checks him. She then gives him either a glucose tablet or a juice box depending on how low he number actually is. A couple of times the teacher has called me to ask if he can have a special treat they brought in to teach an assignment. Usually, she already has the carbs counted out. Easy breezy... Hmmm...

Also, at school, there is an angel that they have hired to take care of him and the two other diabetic children in the school. She spends her day,  floating around the school counting carbs, checking blood sugars and watching exercise levels. I just love her! She is like an extension of me and she is dong what I consider to be my job (watching his blod sugar all day long). I am eternally greatful that I have such a caring person taking care of him while I can't be there. This used to take over my entire brain all day! 

If it wouldn't be creepy and it could become socially acceptable, myself (and all of the other diabetes parents) would just follow our children around behind them throughout their lives. No, really, we would! Go ahead and laugh but truly, you ask anyone of us and, we would be happy to sit outside their college dorm rooms and business board rooms peeking in to remind our grown children to check their blood suagrs. But until this is acceptable, we will rely on teachers, aides and school nurses and sit frozen in our houses waiting until the next blood sugar text or phone call comes through pretending we have some other kind of lives! Haha! 



3) Finally, I am letting him work the buttons on his insulin pump. This is scary. He is still learning three digit numbers and I have to make sure doesn't transpose any. Entering a blood sugar of 312 instead of 132 could be life threatening. So I watch as he enters the carbs and the blood sugar number and then pushes the button to give himself the correct dose of insulin. This is also a hard job to let go.  But again, he is so proud to be doing such an adult job. He makes this all so easy! 

So, here I sit, "bored"(?). Wow! This is all new to me... Guess I will tend to the thawing meat now...woo hoo! ;) 

What was it like when you sent your child to school? 


2/15/12

Valentine's day for a diabetic 6 year old



I have to say I was nervous about this Valentine's Day.

Past Valentine's Days have not done well for Rocco or I. Ok, take a trip down memory lane and remember your kindergarten or first grade Valentine's party. Close your eyes. What do you see? If you saw treats, raise your hand. Yep, I will bet 99% of you said "treats!". The other 1% said Valentine cards. Right? Truth be told, that is the way it should be. I agree, whole heartily! I love treats, especially pink ones. Especially since we are all trying so hard now to make healthy choices everyday for our kids. So, letting them go hog wild for one day and eat what they want should be OK. It should be, unless you are diabetic. I have said it before and I will say it again - Diabetics can eat sugar, they just need the insulin to match the carbohydrates. That being said, people with diabetes will live a better life overall if they eat fast acting carbs (jellies, ice cream, frostings, etc...) in limited moderation. It's not that they "can't" have it, it just makes their blood sugar spike and it takes a little while for the insulin to "eat up" the high blood sugar. Short spurts(hours) of highs are not terrible long term. Long spurts(days) of highs are life threatening.

But, a table of sweets, can, and has sent, this little one into blood sugars in the high 400s and even low 500s during his pre-school years. So, as you can see "Sugar Day" as I like to call it, is no longer my favorite holiday.

Last year for his Kindergarten Valentine's party, I called my mother crying after I got in a "fight" with a mom who said that the teacher told her that the children would rather have 24 carb Capri Suns than mini bottles of 0 carb waters. I still think the teacher never said this. But, during that conversation, my mom had the wise words of saying "Shari, I think it is time that you adjust Rocco around the world and not the world around Rocco". I have thought about that advice and really spent the last year preparing my 50 pound little son for the large world he is about to enter.

This year, I signed up to be in Zeke's class, I was not involved in the party planning for Rocco at all. I did not dictate what was to be on the menu. I did, however, talk with Rocco about choices he should make. We both decided to have him bring a can of 0 carb Caffeine Free Diet Dr.Pepper instead of the Capri Sun. I almost put it in a water bottle because I felt as if I had to sneak it in. But, I decided to leave it in the can. Let the kid have his kind of "treat". We also talked about cupcakes vs. cheese and crackers. Finally, we talked about blood sugar. How fast acting carbs make him feel vs. slow acting carbs. My little guy was so adorable. I wish I would have video taped our conversation. He is so grown up. He really gets his condition. I am so lucky. No crying, screaming or feeling sorry for himself. He was just glad to be "in the know".

So, I swore today to make it about the love and not the sugar. When he woke up his blood sugar was 274.  Shoot! I was hoping his day would have started a little better. 


That is high so I gave him his insulin and was glad I made a low-carb quiche for them the night before.
It only had a small amount of carbs because of the croutons that were in the recipe. Lucky for me he hated the croutons so now he started his day with only 6 carbs from his 1/2 glass of milk!! Trying to make it about the love, I decorated the table and made them goodie bags! I did buy a little box of chocolates that had 5 pieces in it because my dad who passed away two years ago used to do this for my sister and I every year! Thanks again Dad for never forgetting. Other than that, I just bought dollar store stuff. I packed their Valentine's cards and sent them on the bus with dread in my heart. I hate "sugar day".

I got the text from the woman that checks him before lunch and he was 154!! Awesome! I packed him a 0 carb lunch because his party was an hour after lunch.


Once I got to the school, my nerves were shot. Why didn't I get more involved in the planning? Why didn't I just dictate what these little kids could bring? Why am I not brave enough to stand up to the moms and fight for him? Why do I need to? The tension oozing from me was, I am sure, obvious. Then, something amazing happened!

I looked at the sugar table and I saw this (3 carbs)...


and this(0 carbs)


Besides the dreaded Capri Suns (which we already figured out) there were Rice Crispie hearts (12 carbs) and Jello Jigglers(10 carbs)!!!!!

The entire plate was only 25 carbs! I started to tear up and one of the moms quietly said "oh, is that OK for Rocco? We didn't get too much did we?'. I just hugged her and said 'No, it's perfect. Thank you very much for trying for him".

For the first time, I felt proud of myself. I felt like I had tried so hard to do everything right by him and it actually worked. I did not fight with moms, I did not single him out as the "special" one, and I did not single myself out as "that mom". These moms just took it upon themselves to "help a girl" out. Most importantly, to help "a little guy with a huge future in front of him" out. Thank you ladies!

I gave Rocco his insulin then walked across the hall to watch my other little munchkin enjoy his 35 carb cupcake! 

And the beat goes on...

2/12/12

valentine's love


  

Today, I got a Valentine that I will cherish for the rest of my life. During every low, every high and everything in between I will just read this note that I found in Rocco's backpack. Maybe I will even laminate it and stick it in my wallet! 

Get the Kleenex ladies. This one will get ya! 

"My mom is my hero. Because I wouldn't have anyone to take care of my diabetes."

Seriously.... I cried a bucketful! 

What he doesn't know is this little guy is MY hero!!


I love you my little warrior! 

Happy Valentine's day everyone!