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Our long story shortened...





20 years of being in love

14 years of marital bliss

5 years of infertility

9 months of a high risk pregnancy

2 perfect boys (at the same time)

1 heart failure

1 type 1 diabetes diagnosis

1 happy life

To see the whole story click on the "about us" tab

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I am a stay at home mom who is raising twins. One of my guys has type 1 diabetes and one does not. I am writing this blog to unite type 1 parents or twin parents. Comment on my posts or in the "what's your high?" and "what's your low?" to join the community of parents just trying to do the best we can!

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2/9/12

Mother's guilt

 

When we found out that Rocco had Type 1 diabetes, he weighed 21 pounds. He was 22 months old, still in diapers. He knew how to walk and hmostly knew how to talk. He did know the word "ouch", but in the first year of 10-12 finger pokes and at least four shots per day, he only said it to me once.

 

I remember it vividly because I had been expecting to hear him complain for a long time. I cringed every time I had to check his blood sugar or give him an injection of insulin. It had to hurt, right? One night, it finally happened. I checked his blood sugar while he was sleeping, and, as I poked him, he sat straight up, looked me straight in the eye and gave me the meanest look. He said, "Ouch! Mommy that HURTS"growling out the word "hurts".

 

At first, I remember feeling relief. Relief for, I guess, finally having him tell me how he really felt about the needle hitting his fingertip all day, every day. But, when I look back, and if I am really honest with myself, what I felt was relief that finally I was getting the pain I knew I always deserved. His words stung me like a knife cut, but the pain I felt from his words eased my guilt. The guilt I had felt regarding him getting diabetes. This guilt was a weight that I had strapped on my back the day we entered the ER and constantly carried with meIt was like a blanket I wrapped around me every day as I woke up. Oddly, my guilt felt familiar and safe. 

 

How could I have allowed my little guy to get this? Did I do this to him? Was this what God was trying to tell me while we tried so hard to conceive these little guys and couldn't? Was he saying, "I am not going to give you these angels because this little one is going to have a lifetime of suffering if I send him down to you"? Did he get this because we did in-vitro? I tried everything to become pregnant and become a mom. Did I push too hard, causing my baby to suffer because of my selfish desire to hold him in my arms? Did I do this to him because I was unable to breastfeed while he was an infant due to my congestive heart failure after their delivery?

 

So for him to finally "blame" me and growl his anger at me, I felt relief. I felt like I was finally being given the punishment I deserved for doing this all to him.

 

Cognitively, I am aware that none of this is actually the way it all worked. I do not really believe God punishes people or babies. I do not believe that breast feeding or in-vitro impacted his diagnosis. But it is amazing how deep a mothers guilt can go, isn't it? It can burn you so deep in your soul that the most irrational thoughts can become your reality.

 

My friend once told me during the first month of her son's diagnosis, he had a seizure. It turned out he had a sensitivity to insulinThis cruel joke can sometimes happen. Her husband was out of the country and she had three other kids at home. She held him in her arms, as he seized, while she tried to read the instructions on how to administer the Glucagon, a life saving injection of glucose sent straight to the blood stream. She said she has seldom slept through the night since and hasn't ever forgiven herself. I related very well to her when she told me this story. 

 

Also, I recently read an article about general practitioner's guilt when his daughter went undiagnosed for a while.  He didn't add up the signs of her diabetes - extreme thirst, going to the bathroom a lot, lethargy, and agitation. These signs are easily dismissed because most people just think their child is going through a phase or is just hot due to warm weather. Each one of these symptoms can be explained in a myriad of different ways, but once all put together, they can add up to a diagnosis of Type 1 diabetes. 

 

A parent's guilt can be overwhelmingespecially when it relates to something that is life-changing for a child. Our job is to protect these little ones. When we can't protect them from all the world's hurt, it is easy to go into hyperdrive and transfer our energy into guilt. It has been four years since that day when Rocco growled at me, and I can say I am still working through the guilt. I am trying to move forward into a healthy, happy family life that isn't overshadowed b"could haves" or "should haves".

 

Tell me your mom or dad "guilt" story. It is actually kind of therapeutic. I'm happy to give you the platform. Please, share...


2/5/12

#PaulaDeen eat your heart out!

Ok, what I am about to write is NOT life changing, but I found a low-carb meal that is very easy to do.  I wanted to share the news! It's perfect for a Tuesday if you need to get Suzy to gymnastics in 45 minutes, feed a family of five and have everyone love it and not complain. Save grandma’s three-hour meatloaf recipe for Sunday! 

 

As background, I had someone ask me to post a low-carb meal that she can make for her diabetic daughter.  Here is a meal that makes me actually eat a pork chop. Something I have not done since my mom "Shake n' Baked one in 1979. Yuck! Sorry mom! 

 

Thank you Kraft and Dole for making this meal easy and low-carb. The whole thing takes about 30 minutes from refrigerator to table.

 

The key to this meal is something Kraft just came out with called Fresh Take. No, I am not getting paid by Kraft (or Dole), I wish! 


Click this picture to get to their website. Tons of other yummy recipes on their site. 

You can find it in the cheese section in the grocery store.  It comes in four different flavors and the ingredients include cheese, spices and breadcrumbs in a zipper bag. You throw your meat in and toss around a little. Sing a happy song while you toss because this is the easiest meal you will make all week! Then, you take out the meat and put it in the oven.  Follow the directions on the package for time and tempThey say you can use it with chicken, fish or pork. 

 


This cool, little thermometer helps me keep an eye on the temp. You can grab them at Bed, Bath and Beyond (dont't forget the big blue coupon!). The sensor goes in the meat into the oven, with the temperature gauge on the outside of the oven. Then you can monitor the temp outside of oven, so you don't have to keep peeking.

     



Here is a hint about meat that my husband has taught me. Take meat out of the oven 10 degrees below the recommended temp and cover with foil for 10 minutes. The idea is that meat still cooks outside of the oven, but slower to make the meat more tender. You should try my husband’s filet steaks! Another tip he taught me is cut all meat in slices (like turkey dinner slices) not cubes. Give it a try, especially with tougher meat like beef or pork.


The Fresh Take creates a crunchy, cheesy coating over the meat and keeps the juices inside. Each pork chop is only 8 carbs. Yum!

 

Next, open a Dole Salad Kit.  Enough said.  This one has a sweet dressing and has cranberries. Yes, it was on manager's special. No it wasn't expired (yet). 


If your kid won't eat a salad, just try some thinly sliced raw veggies such as red, orange or yellow peppers. Give them ranch to dip who cares how it gets in them, right?  A mom recently told me that she put green beans on her table 11 times and her kids would NOT eat them.  One day she made them into bunny ears and they asked for more! Who knew? 

 

If you’d like to add some carbsseason some low-carb bread with butter, garlic salt and shredded parmesan or mozzarella and broil until it bubbles. This carb addict (go figure) loves me some cheese bread! Yum!



Since the carbs for the Fresh Take are so low, one cup of salad (8 carbs), one pork chop (8 carbs), one piece of low-carb bread and 6 oz of milk (10 carbs), the total dinner is only 26 carbs!


The munchkins LOVED it!  



No, really, they did! See? Don't make fun of my paper cups. Hehe! 


Ingredients: 1 Fresh Take, 1 package of pork chops thick cut, 1 Dole salad kit, 1 bag of low carb bread(optional) and milk. 


So there you have it PaulaDeen (#pauladeen)!  That's how us diabetic parents do it. You'll get there. Let me know if you need any help!